Tuesday, July 20, 2010


Hi, my name is Katie.....I am sick, but I am blessed. I have Cystic Fibrosis, but I am "healthy". I played sports all through high school, I can normally walk, run, and exercise and only get "normal" expected shortness of breath....no oxygen needed. I have a son that I carried, gave birth to and breastfed and, who now I can chase after and play with....a dream for many women with CF that may never come true. I dont own a vest or do daily nebs....I only have an as needed inhaler. I don't take digestive enzymes.....I do take ADEK. Im not underweight. I have only been hospitalized once in my life and have had 2 PICC lines....double-lung transplant has never been in my vocabulary.....by all CF standards I am completely abnormal....yet, recently, with the harsh year I've had in regards to being sick....I've quickly realized this may not always be the case. I've realized that my reality may one day be my history, my "used to", and I cant let that happen. I have too much to live for now. It's time to focus on me....so I can stay ahead of this disease.


Kelly said...

I completely agree! You are pushing so hard that your health is bound to suffer because of it.

How much longer do you have to bust your butt working nights and school all day?

Misty Dawn said...

Its so good to hear from you again. Try to stay ahead as much as possible. ((HUGS))

Jen said...

Definitely slow down if you can and relax! You've got to stay healthy for that little boy of yours!