Tuesday, July 20, 2010
Hi, my name is Katie.....I am sick, but I am blessed. I have Cystic Fibrosis, but I am "healthy". I played sports all through high school, I can normally walk, run, and exercise and only get "normal" expected shortness of breath....no oxygen needed. I have a son that I carried, gave birth to and breastfed and, who now I can chase after and play with....a dream for many women with CF that may never come true. I dont own a vest or do daily nebs....I only have an as needed inhaler. I don't take digestive enzymes.....I do take ADEK. Im not underweight. I have only been hospitalized once in my life and have had 2 PICC lines....double-lung transplant has never been in my vocabulary.....by all CF standards I am completely abnormal....yet, recently, with the harsh year I've had in regards to being sick....I've quickly realized this may not always be the case. I've realized that my reality may one day be my history, my "used to", and I cant let that happen. I have too much to live for now. It's time to focus on me....so I can stay ahead of this disease.